The prime minister of the UK yesterday outlined his plans for reforming the benefits system and reducing unemployment. In it he specifically targeted the mentally ill and talked about making it harder for them to be fully signed off work as well as access disability benefits. Under his plans patients will have to go through an assessment by some as yet unnamed ‘specialists’ to be signed off rather than talking to their GP. You can read the full speech here.
Dear Mr Sunak,
I have been one of those people who has been signed off work due to mental illness. As I write this I am in the midst of the draining and exhausting process of phasing back into work after six months off. Maybe the fact that I’m returning to work would redeem my absence in your eyes, but I suspect not. I imagine all you will see is my six months of ‘economic inactivity’.
Normally I tune out of politics. The sense of powerlessness and anger I feel watching the dishonesty and division caused by our so called ‘leaders’ is bad for my mental health. But I watched your speech last night. As I watched I found myself crying with anger, frustration and a growing feeling of despair. Listening to you I tried to keep the hate from rising in my heart, I tried to ascribe to you good intentions. Honestly as your words hit me, I felt so alone. I could feel the stigma clinging to me like ink I knew I would be unable to wash off. I can’t hide from your judgment that I am a part of the problem.
My mental health has always been complex, that’s what you get when you mix depression, anxiety and an eating disorder with debilitating chronic fatigue. I fall in the category of ‘high functioning’ mental illness. Most of the time I push through and manage to present a mask resembling some semblance of normality to the world. But pushing through costs me a great deal and it isn’t always an option.
Last year was one of the hardest in my life. I survived a painful redundancy season at work but came out of it stressed, bruised and depleted. It didn’t take much to trigger a relapse of the Anorexia which had been lurking on the sidelines ready to lend a hand. For four months I kept working. Somehow I held it together even as my body was starving and I was losing my hold on sanity. You see, eating disorders can be powerful like that, they can be coping strategies that allow you to do the seemingly impossible. If you follow their rules you feel powerful and in control even though in reality the prison walls are closing around you.
But I knew I needed help, I understood I was relapsing and required specialist support. Throughout this time I was open with my GP but there was nowhere she could refer me to. You see, dear prime minister, decades of underinvestment in mental health services means that early intervention doesn’t exist. To get NHS support you have to get sicker and hope that when you’re eventually allowed on the waiting list it’s not too late. Rather then treat the tumour straight away you are told to come back when it’s life threatening. If I could have accessed eating disorder support in those early weeks I could have stayed in work and saved myself mountains of pain.
Fast forward to September and I was completely out of my depth and going downhill fast. I knew that whatever my BMI may have said things were becoming dangerous. My only option was to pay for private eating disorder treatment. But by then we were long past the point of early intervention, meaning that the road to recovery would be excruciatingly difficult. As you said in your speech “you don’t get anything in life without hard work” and on that point I do agree. However, what you don’t understand is that recovering from an eating disorder or other serious mental illness is some of the hardest work anyone will have to do in their lives. At times wrestling my life back from mental illness has been a full time job.
I am already weighed down with guilt and shame about my absence from work without your stigmatisation. Guilt and stigma can be a massive hurdle to recovery. At first I was determined to go back after just three weeks but the medical professionals around me managed to talk me out of it. I was simply too unwell. Eventually I came to the realisation that if I was ever going to get back to living a meaningful life I had to take this time away from work to focus on my recovery. Those sick notes may just have saved my life.
Disability is financially challenging not just in terms of extra costs like therapy or care but also due to reduction in income as you’re more likely to need to work part time. In your speech you made it sound like the disability support payment, Personal Independence Payments (PIP), is easy to get and out of control. Anyone who has been through the gruelling process will know how untrue that is. I am currently in the process of applying for it myself after putting it off for years knowing how difficult it can be. For me and for many it could be a lifeline, a way of staying in work whilst still having some quality of life.
You talked about “the risk of over-medicalising the everyday challenges and worries of life”. In those words lies the implication that people are being too sensitive, that they’re getting diagnosed with mental illness when they should be pulling themselves together and getting on with life. It’s clear you’ve not lived with clinical depression or anxiety. It doesn’t sound like you’ve encountered the hellscape that illnesses like these create. I would give every penny in the bank to only have to deal with the ‘everyday challenges and worries of life’ rather than crippling mental and physical illness. The idea, Mr Sunak, that without a medical licence you can decide that people, who you have never met, are not genuinely ill is insulting and demeaning.
We’ve fought so hard over the years to get mental illness the same respect, funding and recognition as physical illness. We’ve worked hard to challenge the idea that mental illness has anything to do with laziness or being ‘work shy’. Your rhetoric in that one speech is catapulting us in the wrong direction.
I have no doubt that following your speech yesterday some people struggling with mental illness will decide not to reach out for help. This can be life and death. Suicide is the leading cause of death in males under 50, a statistic that should be an urgent call to action. It’s also looking like the suicide rate increased in 2023 to a level we haven’t seen for twenty years. If you make it even harder for people to have space to recover, and force them to jump through hoops or reduce their income, it’s inevitable that more people will die. Mental illness can be devastating, it can take and destroy lives.
Throughout your speech, Mr Sunak, your catchphrase was ‘that’s not right’ but we differ on our definitions of morality. In my opinion it’s not right when those in political power target the most vulnerable and marginalised groups for political gain. It’s not right that instead of fixing the failing mental health services you are blaming those unable to access the treatment they desperately need. It’s not right that you’re attacking unemployment rates amongst young people without addressing the devastating impact that the social isolation of the pandemic had on their wellbeing. It’s not right that rather than adequately understanding and addressing the mental health crisis you are adding further financial burdens onto those already at breaking point.
The sceptic in me thinks you are trying to unite the UK around a common enemy in order to distract from the political train wreck your party has become. But that’s enough now. Please stop. Don’t target those who are already suffering, those who lack the resilience to overcome any more obstacles. There’s nothing right or moral about that.